What gets people to read?

What gets people to read is my question today?

I am thinking of what makes me read something and I am struggling to know what. Here are some of what gets me to read:

  • the intrigue that gets me looking further, the expectation that it’s going to be a SURPRISE!
  • the title that gives me a question to be answered and only can be answered if I continue to read.
  • the expectation of what something is going teach me
  • the fear if I don’t read I will miss out on something that can help me
  • the assumption that I know what something is going to include so I make an informed choice
  • the lack of understanding of a title so it’s a MUST read to see if it’s really what it says on the tin (title)
  • I also like a title that may hold a conspiracy theory
  • lastly I choose if I think I may have an opinion of the topic, if it’s near to my passion.

These are some of the reasons I read certain things and not others. What are your reasons you read articles, posts, tweets or books?

 

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Social Care and the NHS…

For the last few days I have been ‘tweeting’ I am new to this and just wanted to be more pro-active. I have had a good time just commenting and retweeting tweets until today. I know social media is known as a bit of a harsh place to be at times. However, being part of the care industry and training both nurses and carers I think it is important to be fair when posting about social care and the NHS. I made a comment that it is not only social care that has the poor care but so does the NHS and the response from a particular person was rather harsh. Telling me that NHS is superior and telling me ALL social care providers are rotten (not word for word but that the tone of the comments).

I am not disrespecting the NHS I am grateful for it but when will people understand bad care happens in the NHS to. We as a family have witness this on a number of occasions (not just once). It seems everyone is quick to speak negatively about social care both home care and care homes. Don’t get me wrong I have been honest about our experience with home care also but lets ensure we are not constantly thinking the NHS is superior to everything. It has it’s faults as does social care.

Social care is so devalued and until we value it more we will always have people saying all social care providers are bad and all NHS is superior.

There are many things wrong and one of the things wrong is providers not being held responsible or monitored properly by local authorities. Recruitment of managers, recruitment of care workers not appropriately done. However, the issues are similar within the NHS as well and we should not forget this. The lack of monitoring of how a ward is run as I just don’t get that in the same hospital wards can be so different.

We must push care/nursing/healthcare as a chosen career so we need to show that society and politicians value it . Time we pushed the best practice that is out there, time we were more constructive with our concerns, time to be a solution so if you have a concern do speak up regardless of whether it’s the NHS or not.  Local authorities and CQC time to really understand that one persons experience is important to check out. Time we had zero tolerance of poor practice and care. We have the 6 C’s lets make sure they are followed. Stop thinking all are bad there are so many good providers, hospitals, carers/nurses out there. Stop tarring all with the same brush.

I don’t expect all to agree and I don’t mind if you disagree but once I replied to comments today the person sent me a very harsh reply and placed a screen shot of may profile up. It felt like I was being bullied into shutting up. Sadly my confidence on social media is still not up there so I deleted and blocked the person. I am not about airing my laundry in public. I am about being fair. I am about voicing an opinion. I am about learning from others. I will continue of Twitter but it has left an uncomfortable taste in my mouth of how people can be. Kindness and respect cost nothing.

Mum is on her own journey as a carer.

I have been writing this for week and since I started writing this Grumpy has been in hospital for 13 days. He has just been discharged today after yet another up and down stay within Scunthorpe General Hospital. “Frustrating’ is the main word possibly to use.

Some of you will know that my mum is the main carer for Grumpy (my dad) she is a an incredible woman and has had a life that has been full of ups and downs. She has always aimed to survive and she without a doubt continues to show this.

My mum has been married to my dad (grumpy) for over 53 years (I think). She met my dad as a young woman and they eloped to get married. Times were different then and she made choices that were of the time. Mum and Dad have had a tricky at times marriage but in later life they found their peace together after tragedy.

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They went away every month for 5 days and loved every moment. However, in the last 2 years this has not happened due to Dad’s decline both physically and mentally. Now mum’s life is back to having to survive and not break. Not speaking for mum but I am sharing what she has shared with me as I am sure others may be going through similar and sometimes just knowing your not the only one can help.

Mum is Grumpy’s main carer she has some support in the morning for 30 mins from a care company (the trails of that have added stress also). Mum manages all Grumpy’s medication, she ensures he eats, drinks, that he still goes out (only to supermarket now), she manages finances and she manages his appointments with so called professionals (so called as some have let mum down enormously).

So her journey is full of frustration, anger, sadness, bereavement, bewilderment,  paranoia, jealousy and noise so much more. I will explain each of the words and what it means in the journey for mum:

Frustration:

Not getting support from professionals, not been listened to and no follow up from appointments. In fact her time is taken yo chasing constant answers. She has no one to support from the professional side. Not seen a consultant and having a GP surgery that do not follow things up. This is one of the biggest frustrations.

Anger:

Poor care and lack of dignity given to grumpy which is unacceptable on every level. Mum shows her anger very clearly and has now show how empowered she has become. She has had to raise her anger very clearly and we thought the last stay was the last time we would be annoyed but actually the stay this time caused issues of people not doing their job. Placing Grumpy at risk. It’s just a waste of energy that mother can not afford to lose.

Sadness:

I think sadness would be the loss of the trips and expeditions she used to go on. She seems sad most when she has  been stuck in and not had access to the outside world.

Bereavement:

Losing the man she married. It’s bereaving a loss before it has actually happened. Knowing this is only going to get worse.

Bewilderment:

Being just shocked at the fluctuation of good days and bad days. Not knowing what the day will be until it gets here.

Paranoia/jealousy:

This is Grumpy  having delusional and paranoid thoughts that he voices and this has caused enormous upset to mum. She has been told she has someone in the back bedroom, she has been told she has left him in the house alone, she has been told she has waved to men and it goes on and on. With Grumpy and his Dementia it his hard to know if this is an old personality trait coming out or being more apparent of if its him seeing things or hearing things or interpreting things in the wrong way. Either way it broke mum for a few days she had no sleep hardly, she had to be blunt and firm. She actually changed her approach which worked for a while or is working. What it showed me that in mums journey she is in control more not controlling but able to stand up for herself and she must.

And Noise

Repetitive counting, 1, 2, 3……. then ‘Oh dear Oh dear’ then months of the year and so on and so forth. Its when ever dad is awake and mum has now had to purchase herself some cordless headphones. Just to drown it out.

 

IT is a journey for mum that is exhausting, sad and damn right SHIT.